Synopsis

Keywords: Transferable skills: Patient engagement, Neuro: Neurodegeneration

Coming from a physics/engineering background, it can be easy to get absorbed in the technical aspects of MRI research to the point of losing sight of the end goal of improving health and wellness for people living with disease or injury. This talk will attempt to highlight ways to engage with stakeholders in research design and execution. It will aim to stimulate discussion around how to improve communication, and to form and fully utilise diverse networks to optimise research for patient care.

For those of us coming from a technical background, it can be intimidating to work directly with not only clinicians and clinical staff, but people living with neurological disease or injury. However, for the work we are doing to be effective and meaningful, these links are critical.

This talk will cover a few ways that can help bridge the gap between bench and bedside, with a focus on patient engagement. It will not be so much a guide to how to conduct patent-oriented research as a PhD scientist, but aim to start conversations about how we can foster communication within a translational research team.

The goal is to explore how we can engage the community in research in a meaningful way without creating additional burdens.

Resources:
Roman S. The real p(atient) value. J Neurol Neurosurg Psychiatry. 2019 Apr;90(4):371. doi: 10.1136/jnnp-2019-320455. PMID: 30967490.

Heymann SJ. Patients in research: not just subjects, but partners. Science. 1995 Aug 11;269(5225):797-8. doi: 10.1126/science.7638595. PMID: 7638595.

Greenhalgh T, Hinton L, Finlay T, Macfarlane A, Fahy N, Clyde B, Chant A. Frameworks for supporting patient and public involvement in research: Systematic review and co-design pilot. Health Expect. 2019 Aug;22(4):785-801. doi: 10.1111/hex.12888. Epub 2019 Apr 22. PMID: 31012259; PMCID: PMC6737756.

Acknowledgements

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References

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