Harmen Reyngoudt1,2, Julien Le Louër1,2, Ericky CA Araujo1,2, Benjamin Marty1,2, Pierre-Yves Baudin3, Jean-Yves Hogrel4, Teresa Gidaro5, Laurent Servais5, and Pierre G Carlier1,2
1NMR Laboratory, Institute of Myology, Paris, France, 2NMR Laboratory, CEA, DRF, IBFJ, MIRCen, Paris, France, 3Consultants for Research in Imaging and Spectroscopy, Tournai, Belgium, 4Neuromuscular Physiology Laboratory, Institute of Myology, Paris, France, 55 I-Motion, Research Centre for Pediatric Neuromuscular Diseases, Armand Trousseau Hospital, Paris, France
Synopsis
GNE
myopathy (GNEM) is a neuromuscular disorder, characterized by distal lower limb
muscle atrophy known for the relative preservation of quadriceps muscles. Quantitative
NMRI including fat fraction and water T2 mapping as well as 31P NMRS were
performed in 10 GNEM patients and controls. In contrast to functional and
strength tests, qNMRI and 31P NMRS could detect significant changes in FF and
31P NMRS indices such as pH over the course of 1 year. More interestingly, we
could also demonstrate highly significant correlations between water T2 and the
rate of transformation of muscle tissue into fat, demonstrating the strength of
water T2 as an indicator of disease activity.
Purpose
GNE myopathy (GNEM) is a rare, progressive,
hereditary neuromuscular disorder caused by mutations in the
UDP-N-acetylglucosamine 2-epimerase/N-acetylmannosamine kinase gene
(abbreviated as GNE), resulting in a disturbance of sialic acid production1.
GNEM is characterized by distal lower limb muscle atrophy, gradually spreading
more proximal2. The disorder is also known for the relative preservation
of quadriceps muscles, with eventual fatty replacement of these muscles as
well. Quantitative NMRI (qNMRI) is being used
more and more in the evaluation of progression of neuromuscular disorders such
as Duchenne muscular dystrophy. Besides a few studies reporting about isolated
cases3, there have been no reports of qNMR results in GNEM. The
purpose of this work was to determine if qNMRI measures such as fat fraction
(FF) and water T2, as well as 31P NMRS
indices proved to be valuable outcome measures in a one-year follow up study in
GNEM.Methods
For this study, 10 GNEM patients (47 ± 15 years;
26-73 year age range; 5 male; 3 female patients were non-ambulant) and 14
healthy age-matched control subjects (51 ± 15 years; 22-65; 10 male) were
recruited. All NMR data were acquired on a 3T Siemens Prisma system using a
body matrix coil for qNMRI and a dual-tuned 31P-1H
surface coil for 31P NMRS. Both 3pt-Dixon fat/water separation as
well as multi-slice multi-echo (MSME) sequences were obtained in thigh (left
and right side), the dominant forearm and hand muscles. B1 maps were also
acquired for voxel sorting in the water T2 maps. Additionally, a
non-localized 31P NMR spectrum was acquired in both right quadriceps
and hamstring. FF values were derived from the Dixon images (Fig. 1); whereas
water T2 values were extracted from a tri-exponential fit based on
the MSME images4. Cross-sectional area (CSA) and contractile CSA
(cCSA), which was defined as the real muscle mass calculated by CSA*(1-FF),
were also derived. As an additional parameter, the fatty infiltration
transformation rate (Rfat_change) was calculated as ΔFF/(100-FFBL)
with FFBL defined as the FF at baseline visit. 31P NMRS
data were processed with the AMARES algorithm from jMRUI5. Mann
Whitney, Wilcoxon and Pearson correlation tests were performed for statistical
analysis (P<0.05).Results
Next to significant changes in FF between
patients and controls (Fig. 2a), significantly increased water T2 values
(Fig. 2b) were also found as well as changes in various 31P NMRS
indices in quadriceps and hamstring muscles (Fig. 3). Specifically, pH was
elevated in hamstring as were the PDE levels in both muscle groups.
Intramuscular Mg2+ was significantly decreased in both muscle
groups. Whereas functional and strength tests could not demonstrate a change
after 1 year follow-up7, quantitative NMRI/S could. FF was
significantly increased in quadriceps and leg extensor muscles and
corresponding cCSA values were significantly decreased after 1 year of disease
progression (Fig. 4). In all other muscles, FF increased without statistical
significance. cCSA also decreased significantly in forearm muscles. There were
no changes in water T2 values over the course of 1 year. Few 31P
NMRS indices changed over the course of 1 year with an increased pH in quadriceps
as a notable exception. More interesting were the correlations between the variables
reflecting disease progression and markers of disease activity. Namely, in
quadriceps, the Rfat_change correlated highly significantly with the
water T2 value (Fig. 5a). Water T2 correlated less but
still highly significantly with the FF change while it did not correlate with
ΔcCSA. ΔcCSA correlated better with 31P NMRS indices such as
[Mg2+] (Fig. 5b) and Pi,tot/PCr. In, hamstring and other
muscles, no such correlations were found.Discussion/Conclusion
This study illustrates that qNMRI and 31P
NMRS could detect significant changes over a 1-year period in even a small
group of GNEM patients while functional and strength tests could not. Although
quadriceps muscle is known to be relatively preserved in this disorder, the
fatty replacement in the muscle continues steadily. Moreover, in quadriceps
muscles where the water T2 was increased, the muscles also showed a
faster disease progression, as illustrated by the increased FF and the strong
correlation with Rfat_change, an observation made earlier in adult
Pompe patients8. The results obtained in this study confirm the
ability of the use of water T2 as an outcome measure reflecting the
disease activity. The changes found with 31P NMRS are promising as
they could be additional indicators of disease activity. Future steps could be
the implementation of this quantitative NMR protocol in a larger patient cohort
as well as in clinical trials before and after a suitable treatment.Acknowledgements
No acknowledgement found.References
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